madison…and the amazing heart she has-

may 2.  2015

This kid amazes us every day. Madison didn’t breathe when she was born, was bagged and tubed, taken to another hospital, I didn’t even get to hold her. Open heart surgery at 7 days old, subsequent surgeries after that, PICU heart floor for 10 weeks, born without an immune system, inside the house for two years, feeding tube into her stomach for two years, speech-physical-occupational therapy daily, meds around the clock to keep her alive, 10 specialists, and she’s fought every second to be here on this earth. She does things her own way, has taught us there’s not one way for everyone, and reminds us to celebrate the differences we all have.

this year was supposed to be just a family party for madison too, but cam begged to throw her a surprise party.  cam said she would do the invites, food, decor, and i just had to take her out for the afternoon while they get ready for the party and while the guests arrive.  alex and i took madison out to see avengers, and came home to homemade pizza, a popcorn bar, decorations, and all the guests ready and hiding-madison was so happy and surprised!  it was a fun party!  and i didn’t have to do anything, which made it a nice break for me.  the girls played on the trampoline-which is always where the parties go, volleyball, swung on hammocks, rode the neighbors zipline, and then when it got dark, came in and played ghost in the graveyard in the basement.  ohhh, the screams!

madisons presents from sisters included a floating neckace, and jars of gum, and a vintage skirt-all of which she loved!  oh, and a butterfly mask nadia made and a loom bracelet of couse.  madison bought new shoes, a purse, and makeup with her birthday money-which is always top of her lists to shop for.  she is a shopper, never saving a dime:)

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